Today we received our Mayo Clinic packet in the mail. This included all of the information we need to make our trip successful; from appointment times to lodging. We will leave here on Aug 16 so we can make it for our Aug 18 appointment.
I think we are all excited about this trip and the possibilities it represents. I know it will a long and tedious journey, but maybe one well worth the effort. We are still seeing Claire have 2-6 seizures a day, although we have just gotten on the full dose of the new medication.
So stay tuned to any further developments!
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